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About Lexi

Lexi grew up in Leicester. She loved to dance with her sister Ella, build Lego and travel with her family. Lexi adored all animals, and especially her cat.

Whilst appearing healthy, Lexi was born with a rare immune deficiency which was managed through weekly infusions at home. At the age of 12 she was approved for a stem cell transplant which offered the hope of a non-medicalised life and long-term health. For 15 months Lexi received intensive and dedicated treatment away from home, living in isolation in hospital, supported by her parents Liz and Andy who took it in turns to be her full-time carer.

Lexi died in 2025, aged 14, from complications arising from the transplant.

Lexi's Family

  • Liz - Lexi's Mum

  • Andy - Lexi's Dad

  • Ella - Lexi's Sister

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